Saturday, April 25, 2009

On April 14 we returned to Houston for tests and other appointments. The 14th was tests only -- CAT scan, bone marrow aspiration and biopsy, x-rays, and blood tests. Except for the blood tests, all of these were for a follow-up visit with the stem cell doctor on the 21st. On the 15th we saw Dr. Duvic. She basically said my skin looked pretty good, and she doesn't want to see me again until mid-June. She also removed some of what she thought was a squamous cell carcinoma on my forearm. (This week they told us that it is a squamous, and that I'll need to find a Mohs surgeon to finish the surgery. They think they can fix me up with a surgeon here in town without needing to return to Houston.) We also saw Dr. Plana, my cardiologist, and he ordered an echocardiogram and cholesterol tests.
We drove home on the 15th, and returned to Houston on the 21st. They did the echocardiogram, and I also got my quarterly infusion of Boniva. (I don't know if I've mentioned this before, but I'm involved in a Boniva study. Apparently bone loss is a big issue for transplantees. So I'm in a group taking Boniva along with Vit. D and calcium. Another group is just on D and calcium. They did a bone density on me before my first dose in February. They'll take others at six and twelve months.) Then we saw Dr. Hosing, my transplant doctor. She said the CAT scans looked good, as did the x-rays. Unfortunately, the marrow analyses still weren't in, even though they were done a whole week earlier. We still haven't heard. But the news we did get was all good, so we were pretty happy.

2 comments:

  1. Hello Mikbar,
    I'm Jean from the National Bone Marrow Transplant Link. Our organization helps patients and families cope with the social and emotional challenges of transplant by providing vital information and personalized support services from diagnosis through survivorship. We subscribe to google blog alerts where we found your story.
    Please know that others are thinking of you and wishing you a complete recovery from your transplant.
    I invite you to visit our website, www.nbmtlink.org for more information regarding our programs and services for BMT survivors, including "Celebrating 2nd Birthdays" survivor recognition. I'd like to send you our Help & Hope bracelets if you send a mailing address to jeanjones@nbmtlink.org.
    All the best to you!

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  2. Missed you on Tuesday. We had hoped to welcome you back. Hope the flu is no longer a hindrance next month. Looking forward to the "reunion" show! :-D

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