Thursday, February 19, 2009

We just got back from our Thursday stint at the clinic. With the resurgence of some of my MF patches in the last week, Dr. Hosing sent me to see Dr. Dabaja, my radiation doctor from last fall, to get her opinion as to whether some localized radiation on those patches is called for. Having gone through whole-body radiation last fall, Dr. Dabaja said today that I have too many patches right now for more radiation to be feasible. It would pretty much require doing the whole-body thing all over again, which, besides being dangerous so soon after last fall, would also be ineffective. She wants to wait two weeks and see if the decrease in my tachrylimus medication, which began today, will cause my new immune system to start fighting my MF. Here's hoping. This puts us in the very uneasy position of just sitting around for the next few days waiting for things to happen. The best outcome, like I said, will be if the only thing that happens is that we start to notice that my MF patches begin to subside. The worst outcome is if I develop a bad case of graft-versus-host disease (gvhd). That's when my new immune system identifies one or more of my normal systems (typically skin, intestinal, or liver) as foreign, and attacks it. If that happens, we are supposed to immediately go to the MDACC emergency room. If they confirm gvhd, I think readmission to the hospital so that they can get control of the situation is common. We could also see a combination of a little bit of gvhd AND my new immune system starting to attack the MF. Dr. Dabaja says we should know within a week which way this is going to play out. So here we sit, watching and waiting. And hoping.

3 comments:

  1. Plenty of us out here hoping along with you and sending you love! I was so sorry not to have seen you when I was there, but it sounds like your schedule was as packed as one day can possibly be. I'm glad to have seen your beautiful wife, though - and spend a great afternoon with her. I am looking forward to the day you two come take a walk on the beach with us! love from your Florida friend, Bry

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  2. It was great to see you! A walk on the beach with y'all sounds lovely... Many thanks for the love and good wishes.

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  3. Mike, Nanacy and I aren't all that informed on what you are facing, but we do understand the courage you have to face it. To that end, we are praying for you and that indeed, the immune system is sympathetic to your needs. The interesting thing is King David shows us how to work in these type situations...I Sam 17: Who is this Philistine that he should defy the armies of the Living God!" I would suggest, what is this illness that it should defy a servant of the Living God...

    We are praying.

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