Sunday, January 25, 2009

My red blood cell counts are still down, but my white blood cells continue to climb. Friday I was at 0.4, Saturday I was 0.8, and today (Sunday) I'm at 2.6. I've been told that I need to get to 3.0 to be eligible for release from the hospital and to go back to the apartment. Our hopes are high for this week.
I continue to be very tired and my stomach is still kind of acidic, which affects my appetite. However, seeing and hearing about the condition of many of my blood brothers and sisters here on the floor, I count my blessings. There is tremendous suffering going on behind many of the doors I walk by when I do my walking, and it saddens me greatly, but it also helps me keep my own situation in perspective.
One new side-effect that showed up yesterday is bone pain. We had read about bone pain in the literature, but now that I'm cranking out loads of new white blood cells I'm experiencing it first hand. Apparently my marrow is working so hard at producing cells that it's making some of my bones hurt, specifically my pelvis. Yesterday afternoon my lower back started to hurt, which I thought was due to too much sitting and bed time. The nurse, however, suggested that it might be bone pain. After an hour or two it ramped up some more, and I cried uncle and requested pain meds. She gave me Darvon. My bone pain laughs at Darvon. We switched to Dilaudid. Oh yeah! The pain pretty much disappeared, and I got a nice little four-hour float on Cloud 9. They gave me a half-dose at midnight to see me through until morning. I'm not really sure I needed it, but who am I to just say no to drugs? So far today I'm fairly pain free, but as they are giving me daily shots to promote wbc production, I may have cause to call on my friend D another time or two.
Please keep your fingers crossed for the possibility of my hospital discharge this week.

7 comments:

  1. Fingers, toes, arms, legs... ALL crossed! Thumbs too. XOXO

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  2. Great to see you back and updating all us well-wishers! As long as 'they' say that you're 100% 'good to go' w/o fear of incident, we are 100% behind your D/C from MDACC. Once that happens, what's the next step? We're unclear on that account...

    Gettin' a little stir crazy are ya,laddie - I can only imagine! Unless Nsg says otherwise, get yourself uo and outta that bed a few times a day, even if it's for just a few minutes - you'll be out of there before you know it.

    As for the meds, we all know that you're not a drug fiend, and that pain and sleep deprivation are not your friends, so JUST SAY YES!

    Know that loads of loving, healing energy continues to be sent your way, to draw on when you feel too tired to give yourself a boost!

    Fingers Crossed!
    Love,
    PT&JC

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  3. There's major finger crossing going on in West Texas right now.

    Love to you both!

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  4. Dad,

    Bijou, Bunny and I all have our paws crossed...beats the heck out of fingers! Sorry to hear about your appetite but hey, why not order an extra salmon dinner and send it to me. There is no use in both of us losing our strength and since you are getting the good drugs I might as well be taking advantage of the delicious food!
    Dad, it is so like you to be concerned about the other patients. Since I now have access to Susan's laptop I have been doing quite a lot of research and have discovered that people recover faster when they focus on others instead of their own suffering so, you will be back in your apartment in no time and then back home with us as well! We can't wait! Dad, you and Mom are the greatest!

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  5. glad to hear of the rise in your wbc. wow, a possible leave the hospital date. that's great. but before you leave, do you think you can get me some dilaudid for my cedar fever?

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  6. I think if you're surfing the D, you should be listening to that band you've been known to practice with once in a while. . . dreamy!

    Glad to hear that the counts are rising. Pain-free healthy thoughts coming your way.
    xxx
    kat et al

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  7. South Carolina sends big time wishes for you to heading out that hospital door - soon!

    love you,
    k and j

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